I joined Dino Verelli, founder andCEO of Project Purple, on a special episode of the Project Purple Podcast to talk about how I’m doing post Whipple and to celebrate Project Purple’s 10 years of helping pancreatic cancer patients and families. I was on Episode 107 in February 2020, and now am back for Episode 134. Dino asks some very clear questions of me. You can hear our conversation here:
I spent a long time waiting to publish this episode. It’s been six months to the day since my Whipple procedure. Here’s the story:
Here’s another special episode of The Adventures of PanCan Man. This one features Stephen Roche, Son of PanCan Man, as we talk about a 2,700-mile road trip we took to drove to Mayo Clinic and back. Along the way we saw the sights — Niagara Falls, the Rock and Roll Hall of Fame, Notre Dame University, and The Bean.
This show is in three parts…the revelation, the trip, and the Q&A.
Here are some photos from our time On the Road.
Ever wonder what it’s like to be zapped in the pancreas under a linear accelerator? Hasn’t everyone? With this issue of the show, here’s your chance to find out all the details.
Welcome to a very special issue of The Adventures of PanCan Man. In this show I asked my caregiver, my wife Sheryl, to sit down with me and chat about her perspective on these past nine months of me dealing with Stage 3 pancreatic cancer…and her role as a caregiver throughout this time. She really has been the superhero in all of this. Left to my own inclinations…well, I’m lucky that I don’t have to be. But I’ll say I’m better because she took care of me in my darkest moments…and some of those were really dark. And still she stands.
One of the worst side effects from chemo isn’t all that painful. It’s just disgusting. Ever heard of thrush? Well, listen up and you’ll hear all about it. Plus, you’ll get a story of my biliary stent replacement. And if you listen all the way to the end, you’ll get an update from me on my current status with pancreatic cancer.
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Chemo is simple, right? Sit in a chair, get hooked up to a pump, and boom…you get your chemo. But it’s not quite that easy, especially when our pancreatic cancer superhero has to have his chemo port replaced after only two uses.
Plus, you can hear about the joys of fentanyl (that’ll make anyone feel like a superhero). And why nurses are your best friends.
You can’t turn on the TV without hearing a cancer drug ad if you’re in the U.S. And you can’t watch a TV show without a gratuitous cancer story. And don’t get me started about sappy sports stories and cancer. I mean, it’s cancer-cancer-cancer.
In this episode, I take a break from the sequence of terrible, horrible no good, very bad days with pancreatic cancer to talk a bit about cancer triggers (see above) and chemo fog. The struggle is real.
Please send me a note at firstname.lastname@example.org if you’d like to chat more, if you have an idea for the show, or if you have a story that you’d like to tell on the show.
You can find the podcast wherever you get your podcasts. Please do me a favor and share this episode if you think it could be helpful to a patient or caregiver.
One of the benefits I get with pancreatic cancer is the expansion of my vocabulary. In this episode, I get into a situation that requires interventional radiology after I thought chemo round two went great. In the words of Roseanne Roseannadanna, “It’s always something.”
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I’ll keep fighting the good fight and not let my pancreas be my kryptonite.
Take a little tour with me today when I tell you all the details of my experience with my first chemotherapy round of FOLFIRINOX. That four-drug combination has proved to be a lifesaver for people like me who have pancreatic cancer. But I can tell you there are consequences for using such a powerful drug cocktail — and I experienced them all. You’ll learn about my neurotoxicity. About a cholinergic crisis. About the application of atropine. And how I thought I’d seen my last day on my first day of chemo.